Abstract:

This presentation addresses the somewhat conflicting developments in healthcare research over recent years - a move toward ever more innovative, consumer-driven research approaches, and the increase in guidelines and legislation specific to this sector, intended to preserve patient and public safety and to promote transparency in the industry. Employing a recent case study of research, conducted with HIV patients to get under the skin of those living with the disease and establish how they feel about the side effects experienced on a range of HIV regimens, we place these challenges in a real life context. The presentation looks to answer whether we can really gain these new depths of insight, and embrace these innovative and modern techniques, without 'falling over the edge' and into disrepute?